Work Group on Consumer Access Policies for Networked Personal Health Information

Scope and Charge

The Connecting for Health Work Group on Consumer Access Policies for Networked Personal Health Information seeks to make policy recommendations to facilitate individual consumers’ ability to make secure electronic connections with many sources of their health data and services. Its charge is to help identify policies (such as privacy, consent, secondary use of data, etc.) that support trust in sharing personal health information with individual consumers across a network. Key components of the mission include articulating appropriate privacy protections and enabling individuals to draw data into applications of their own choosing.

Lead

David Lansky, PhD, Pacific Business Group on Health (Chair)

Staff

• Matt Kavanagh, Independent Contractor
• Josh Lemieux, Markle Foundation

Work Group Members

• Wendy Angst, MHA, CapMed, A Division of Bio-Imaging Technologies, Inc.
• Annette Bar-Cohen, MPH, National Breast Cancer Coalition
• Jeremy Coote, InterComponentWare, Inc.
• Maureen Costello, Ingenix
• Diane Davies, MD, University of Minnesota
• James Dempsey, JD, Center for Democracy and Technology
• Stephen Downs, SM, Robert Wood Johnson Foundation
• Joyce Dubow, AARP
• Thomas Eberle, MD, Intel Corporation and Dossia
• Lisa Fenichel, Health Care For All
• Stefanie Fenton, Intuit, Inc.
• Steven Findlay, Consumers Union
• Mark Frisse, MD, MBA, MSc, Vanderbilt Center for Better Health
• Gilles Frydman, Association of Cancer Online Resources (ACOR.org)
• Melissa Goldstein, JD, School of Public Health and Health Services Department of Health Sciences, The George Washington University Medical Center
• Philip T. Hagen, MD, Mayo Clinic Health Solutions
• Robert Heyl, Aetna, Inc.
• David Kibbe, MD, MBA, American Academy of Family Physicians
• Jerry Lin, Google Health
• Kathleen Mahan, MBA, SureScripts
• Ken Majkowski, PharmD, RxHub, LLC
• Philip Marshall MD, MPH, WebMD Health
• Deven McGraw, Center for Democracy and Technology
• Kim Nazi^*, FACHE, U.S. Department of Veterans Affairs
• Lee Partridge, National Partnership for Women and Families
• George Peredy, MD, Kaiser Permanente HealthConnect
• Joy Pritts, JD, Center on Medical Record Rights and Privacy, Health Policy Institute, Georgetown University
• Scott Robertson, PharmD, Kaiser Permanente
• Daniel Sands, MD, MPH, Cisco Systems, Inc.
• Clay Shirky, New York University Graduate Interactive Telecommunications Program
• Joel Slackman, BlueCross BlueShield Association
• Anna Slomovic, PhD, Revolution Health
• Cynthia Solomon, Follow Me
• Ramesh Srinivasan, MedicAlert Foundation International
• Michael Stokes, Microsoft Corporation
• Susan Stuard, New York-Presbyterian Hospital
• Paul Tang, MD, Palo Alto Medical Foundation / Sutter Health
• Jeanette Thornton, America's Health Insurance Plans
• Frank Torres, JD, Microsoft Corporation
• Tony Trenkle^*, Centers for Medicare & Medicaid Services
• Jonathan Wald, MD, Partners HealthCare System
• James Walker, MD, FACP, Geisinger Health System
• Marcy Wilder, JD, Hogan & Hartson LLP
• Anna Wong, Medco Health Solutions, Inc.
• Matthew Wynia, MD, MPH, CAPH, American Medical Association
• Teresa Zayas-Caban, PhD^*, Agency for Healthcare Research and Quality